Jennifer in New York
My story isn’t a dramatic one, but I need the ACA because I’m a freelancer. In my late 30s, I was laid off during the recession (2009), went back to school, changed my career, became a freelancer. At first, my current company offered me benefits, but at the last minute, just after the first ACA sign-up deadline, they decided to offer me a contract without benefits. I missed the first year of ACA because of this, so in total I went 5 years without health insurance.
Since my company will not offer me a staff position, and I’m a woman paid less than my male counterparts, I will never be able to afford a higher priced healthcare. I’m getting older. I have no pre-existing conditions, yet my premium has gone up 13.5% this year. I’m already paying over 10% of my income for my healthcare premium with a high deductible. I will be priced out of basic insurance if this administration continues to defy the constitution by sabotaging current US law, and discouraging sign-ups and healthcare insurers.
The ACA was a first step on our way to universal healthcare, something many countries in the world have accomplished. It was a monumental effort of cooperation between government, states, industries and individuals. We must keep going with the ACA and fix its faults. The nonsensical machismo posturing in our White House and Congress must stop and they either need to remember why we voted for them, or resign.
Theresa in New York
My story is about my daughter Emily who has been diagnosed with a rare form of sarcoma, so rare that the drs at Cleveland Clinic aren't quite sure how to treat it. She has just started radiation but there's a chance that she will have to go through Chemo therapy afterwards. She is only 27 years old. I am so worried that she will lose her coverage.
Meet Owen. Owen is very smart, an avid reader, loves mysteries (TV and books) and science, and loves spending time in Prospect Park. Owen has Spinal Muscular Atrophy Type I. He is fully ventilator dependent, depends on a feeding tube for nutrition, uses a wheelchair for mobility and depends on nurses and his family for total care.
Leonore in New York
I have Parkinson's for 18 years, and have Medicare Disability since 2008. I am 62 and the ACA allows me to have a preexisting condition and a team of excellent multiple doctors who treat my neurological symptoms, my GI symptoms, and my urological symptoms. Because I'm on Disability, my 24–year old disabled son who lives upstate has been able to obtain Medicaid to treat his health problems.
We'd both be in terrible trouble if we lost our coverage.
Jane in New York
I am self employed. My insurance became too expensive about 3 years before the aca. For those years, I lived in shame, never telling friends or family, and fear. Getting ocare was an immense blessing and relief. I need ocare!
Patricia in New York
I am among the millions at risk of losing healthcare. I have Medicaid. Although I am able-body and healthy, Medicaid gives me the peace of mind that I am covered. It covered me when I was hit by a car while riding a bicycle just this year. It also covered me when a crazy woman gave me multiple blows/punches in the head in a crowded bus just this year. Having health insurance is a human right that shouldn't be violated. Most Medicaid recipients such as myself pay more taxes than President Trump (a/k/a fake president).
Amanda in New York
I am a freelance writer who is hoping to become a dog trainer. It has been incredibly difficult as an older Millennial to find a well-paying full-time job. No one wants to train employees anymore; they all want "experience." I have seven years of writing and editing experience yet I still can't find a stable full-time job. I don't make much as a freelance writer because no one wants to pay a living wage or they just want free work, which is why I am studying to become a dog trainer and if it wasn't for the Medicaid expansion in NYC, I would be unable to afford health insurance. I suffer from Pre-Menstrual Dysphoric Disorder, hearing loss and migraines. I need my birth control pills to keep my PMDD in check and i am terrified of what will happen if the ACA is repealed. My boyfriend is also having a hard time finding a stable full-time job and he was born with hip dysplasia. He needs a very expensive surgery to correct it, so for now he walks with a cane and takes medication to stop the spread of osteoarthritis. The ACA needs to be saved so that people like my boyfriend and I don't have to live in pain or struggle to survive.
Nicholas in New York
Everyone needs coverage to stay healthy. Rich people don't appreciate this as much because they don't need as much assistance.
Bruce in New York
My 41 year old daughter, Elizabeth is both developmentally disabled and suffers from C.M.L., a chronic form of leukemia. Because of her disability, she cannot care for herself and therefore she lives in a group home on Staten Island, NY. She is totally dependent on Medicaid for her group home residence as well as all her other services and day programs. Taking 750 billion dollars out of Medicaid could be disastrous for her. And solutions such as waiting 7 years to cut Medicaid would only mean that she would be a 48 year old woman with no place to live and no one to care for her.
As for her leukemia, she is able to keep it in remission by taking gleevec, a pill she takes everyday. The cost for this medication is roughly $100,000 a year. So Medicaid is even more crucial to her because it is keeping her alive. And any attempt to place a lifetime cap on coverage (something that could conceivably happen with block grants to states) would be devastating as this cost of treatment adds up very quickly.
Ellen in New York
My husband has been disabled from a stroke for almost 20 years and unable to work. I am a licensed clinical social worker within busy Private Practice doing counseling with individuals couples and Families period my primary of payment is insurance. If Mental Health Services are dropped as the mandated priority I will not be able to support my family.
My husband and I are both seniors and anticipate insurance premium rates going up exponentially. If we cannot afford how are premiums we will not have the option to look at other insurances. We both have pre-existing conditions.
Please for the sake of everyone do not pass this terrible bill.
Natarsha in New York
We asked Times readers how the Republican bill would affect them. Here are a few of their stories.
Wed Jun 28 2017
I am a cancer survivor. My journey began with an early screening at Planned Parenthood in 2008, after which I was diagnosed with breast cancer. I get follow-up testing every year to ensure that I remain healthy, and alive, so the A.C.A. is crucial for me. My sister is also a breast cancer survivor, and she relies on Medicaid to take care of herself and her three children. My mother has a chronic illness. My health and the health of those closest to me will be in great jeopardy if the A.C.A. is repealed.
— Natarsha McQueen, Brooklyn
Lois in New York
Breast Cancer runs throughout my family on both my parent’s sides. My mother, aunts, and cousins have all had this disease. Some have died from it, including my mother. When I was 23 I had a lump removed. Luckily it was benign. The anxiety, pain of discovery and treatment are excruciating enough without having to worry if you can afford care.
Please do not cause millions of people the heartbreak of losing their homes, their lifestyles, or their lives to in order to pay for healthcare. If America is to be FIRST, we need to care for ALL of our people.
Mon Jun 26 2017
Penny in New York
My son has a life-threatening pre-existing condition for which he recieves medical treatment and medication through the ACA expansion of Medicaid in the state where he resides. Without this he will be unable to pay for his medications and doctor visits, and will surely decline and succumb to his illness.
Both my mother and my husband's father were able to be cared for in nursing homes until their dying days because of the Medicaid they were eligible for after exhausting all of their money paying for their health care. They died with some dignity & comfort.
I am desperate to see the defeat of trump's cruel health plan as I, approaching 65, worry for my own future, the future of my husband and the future of others.
Thank you for listening to my story.
Jennifer in New York
I am very grateful for Medicaid because my mother lives in a nursing home. A stroke paralyzed her left side and she requires the assistance of two aides to transfer from her wheelchair to the toilet or bed. If it were not for Medicaid, I have no idea how we would come up with the roughly $10,000 monthly needed to pay the nursing home, and I do not see how we could care for my mother at home. Our house is not wheelchair accessible, my husband and I both work to support ourselves and our children, and we could not afford to pay for even one person, much less two, to work round the clock to assist my mother.
I also have friends who, through no fault of their own, do not have enough money to pay for insurance and rely on Medicaid for their healthcare. One is seriously depressed and, although she volunteers several hours a week for a nonprofit organization, is not capable of holding a full-time job. Another is a brilliant scholar who is unable to get a job in her area of specialty and therefore cobbles together a modest living by pet-sitting and tutoring.
I realize Medicaid is an enormous expense, which is why the incentives built into the ACA to pay for wellness, rather than procedures, and to reduce the use of emergency rooms, make sense. The ACA proposed to slowly rebuild the healthcare ecosystem to save money. The AHCA proposes to slash and burn, taking money from the most vulnerable in the form of Medicaid cuts, and redistributing it to the most secure, in the form of tax cuts. This anti-Robin Hood plan is deeply undemocratic.