Mon Oct 09 2017

Gloria in Maryland

In November of 2016, my 46 year old husband, who had always been in good health, had a severe stroke. We were told that he might not live, but he did. Months of rehab have helped him recover some of his abilities. He walks, but with assistance or a walker, and he talks, although he still struggles to find words. He has very poor short term memory and cannot make good decisions. He was my family's breadwinner, and I had worked part- time outside the home so I could be there for our 2 young teens. Now he can't function well enough to work. Now Carlos is unable to even be left alone for very long, so he goes to adult medical daycare while I work part time. All of my waking hours are focused on him and my children. Our kids help in his care, but we also get support from a paid caregiver, paid for by a Medicaid program. If we lost our insurance for any reason, especially for Carlos's pre-existing condition, my family would lose everything. If we lost even a part of the Medicaid assistance, I would not be able to work. Please save these programs.

Sat Sep 23 2017

Sara in Maryland

I am a physician. I have a patient with AIDS who is doing great on er HIV medications. No other medical problems. She works for a large company and enjoys her work but has not liked her bosses. She wants to leave and start her own consulting business and has been planning this for years. With the ACA, no problem — her large company has insurance currently, and she can go on the individual marketplace. Without the ACA, she leaves her company, can't find affordable individual insurance, can't pay for her very expensive HIV medications, and is back in the hospital (or worse, i.e., dying) within months. She is not leaving her job.

Sat Sep 23 2017

Sara in Maryland

I am a physician, and the ACA allows me to document better and more fully. I no longer need to worry that if a person is designated as for example having acne and they have a serious condition later, they will be denied insurance for a preexisting condition.

Mon Aug 28 2017

Tracey in Maryland

In 2011, I began dialysis due to End Stage Kidney Disease.. Before dialysis, and well into it, I worked as a preschool teacher, a notoriously low-paying profession. In 2007, when I changed jobs, I lost my employer-based health insurance. After one year of COBRA, a local insurance person and good friend of ours told me about the Maryland State Health Insurance Plan. Through that plan, I was able to obtain quality, affordable insurance. When the ACA began, the MSHIP plan ended. In a meeting with a member of Howard County’s Health Dept. to figure out how to replace my insurance under the ACA, he told me that because of my end-stage kidney disease, I probably would qualify for Medicare. He was right. I also have a supplemental plan (Care First) and a drug plan (AARP), and my parents help pay the premiums for those. In 2015, I had to stop working because of exhaustion caused by dialysis. I then qualified for disability. In June 2016, I had a kidney transplant. Medicare will continue to insure me for three years after the transplant. Our hope is that by then, I will be back to work, but my biggest concern is that without the ACA, my pre-existing condition will prevent me from finding health insurance.What will I do then?

Timmy, age 6 (Maryland) – Little Lobbyists

Meet Timmy. Timmy is a newly minted kindergarten graduate who loves robots and pirates, plays on a local soccer team, and dreams of growing up to become a police officer, firefighter, “ambulance man,” garbage collector, or robot repairman. He is exuberant, hilarious, creative, and one of the most resilient children you will ever meet.

Fri Jun 30 2017

Noël in Maryland

I will soon be 26 and off of my parents' health insurance, and it is thanks to Obamacare that I've been able able to stay on that insurance while I've been struggling with a chronic disease and limited in my ability to work. I have made great strides in recovering my health and should not be punished in the future for having a preexisting condition. As a woman I am more likely to have a chronic, autoimmune disease. As a woman I also have specific reproductive health needs. It is cruel, unjust, and unconscionable that women are doubly punished under this proposed law.

Wed Jun 28 2017

Devora in Maryland

My daughter, Esther, was diagnosed with Leukemia when she was 12. She would not be able to get health ins. under the current proposed bill. She has been through enough.

Wed Jun 28 2017

Susan in Maryland

I am an American citizen who has been resident in Canada these past 20 years. Nonetheless, I have become so deeply concerned about my homeland, specifically as regards the attempt to withdraw quality medical coverage for Americans (and while doing so give tax relief to a portion of the population that least needs it) and also concerned that actions by the current administration and some members of Congress express a gross disregard for the foundation of our democracy, i.e., the U.S. Constitution.

I have emailed two letters to every Republican member of the Senate–as well as to my own Democrat Senator, Ben Cardin–pleading with the Senate to not repeal or weaken the ACA. After these two successful transmissions I have recently found that the Senate's websites will no longer accept copy and pasted text. This means that a concerned citizen has to hand type dozens of times a well though-out letter on a given topic. I assume from this change to the Senate's website that Republican Senators are now not only afraid to meet their own constituents in their home districts at town meetings, but that many other Americans have been doing what I have been doing, i.e., availing myself of the Senate's website to place reasoned arguments before Republican Senators. It is impossible to get through to House members, as their sites reject any zip code that is not within their constituency. My thought on this is that if a Senator or House member can vote on something that will effect my nation's present, near, and long-standing future their responsibility to hear input is likewise nationwide. I'd appreciate anything you can do with others to open up these lines of communication between Americans and their elected representatives.

As regards the ACA, I would like the following remarks I have excerpted from one of my first two letters sent to all Republican Senators to be read on the floor of the Senate:

"The active endeavor to remove access to the same high quality of health care to all Americans, is, frankly, depraved. Basing access to a single high quality of health care on ability to pay premiums and co-payments is intentional genocide based on income. Yet they are expected to pay their income taxes? It is no exaggeration to say that repealing the Affordable Care Act and replacing it with a stage prop that does not serve the need of the American people is, frankly, genocide based on income., It is nothing less.

I am an American citizen resident in Canada for a little over 20 years. Had I remained resident in the U.S. with my four chronic health conditions–rather than moving to Canada some 20 years ago–my fellow countrymen would simply have kicked me to the curb like so much rubbish as my back collapsed and rheumatoid arthritis came on. Being a dual citizen saved my life."

Please don't abandon other Americans.

Mon Jun 19 2017

Julia in Maryland

My daughter has been diagnosed since birth with Osteogenesis Imperfecta and has had over 50 fractures of her long bones. She receives bone strengthening infusions and has had countless rodding surgeries to ensure all bones have rods through them. She uses a wheelchair and a walker (none of which could be obtained without Medicaid. Additionally, she is covered through MCHIPs. We received a bill after a surgery once and at over 100k there is literally no way we could pay that. We would have to file for bankruptcy which would end up shorting the hospitals and doctors. It would be a horrible cycle that would never end as she will always have this condition. Please help to keep my daughter strong and independent.